Navigating a neuromuscular condition can be challenging. Whether you are newly diagnosed, a lifelong member, or a clinical professional, MDANZ is here to provide the direct care, resources, and community connection you need to live a fulfilling life with choice, independence, and dignity.
Services & Support
Personalised emotional and practical support for individuals living with neuromuscular conditions, their families, and whānau. From home fieldworker visits to funding grants, we walk with you through every challenge.
Community
You are never navigating this path alone. Discover peer-led support groups, regional coffee mornings, youth camps, and shared stories of resilience from MDANZ members all across Aotearoa.
Our Research
Driving real progress toward new treatments. Through the MDANZ Research Trust, we fund vital local studies, track global clinical trials, and fiercely advocate for healthcare equity and faster access to life-changing medicines.
Understanding Neuromuscular Conditions
MDANZ provides clinical information, practical guidance, and advocacy for individuals, whānau, and medical professionals navigating over 70 distinct neuromuscular conditions across New Zealand.
Search for a specific condition, e.g. Duchenne, Charcot-Marie-Tooth (CMT), etc
Or browse our A-Z Directory of Neuromuscular Conditions here.
Newly Diagnosed? Start Here.
Receiving a diagnosis can feel overwhelming. Read our gentle guide on what to expect, how to process the news, and your first steps forward.
Resources & Fact Sheets
Access practical downloadable guides for daily living, school accommodations, funding, and clinical management.
The National Registry
Join the NZ Neuromuscular Disease Registry to securely share your data, help track conditions nationally, and gain priority access to global clinical trials.
Real support, right in your community
MDANZ is structured to ensure you never have to navigate health and social systems alone. Our Fieldworkers are mobile support managers who visit you at home, school, or work to provide practical coordination, emotional backing, and equipment solutions.
Northern Region
(Northland, Auckland, Waikato, Bay of Plenty)
Phone: 0800 800 337
Email: northern@mda.org.nz
Central Region
(Lower North Island, Taranaki, Hawke's Bay, Wellington)
Phone: 0800 800 337
Email: central@mda.org.nz
How much impact can you make today?
Every act of generosity, big or small, helps build a world that our members and their whānau can navigate more easily. Your support moves us all closer to a brighter tomorrow.
Stories from Our Community
Stay up to date with the latest inspiring journeys from our members, advocacy initiatives happening in government, regional events, and new research findings making a difference across New Zealand.
