The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.
We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community.
Condition Profile
Becker muscular dystrophy is a genetic condition where complications can be minimised by adhering to a management programme specially designed by medical professionals. Read more.
Member Profile
Paralympian, Tim Dempsey writes about living with Becker muscular dystrophy and says the condition has taught him to focus on what he can do, not what he can't.
Covid-19 Information
We've collated some useful information from the Ministry of Health and other organisations, about Covid-19 and vaccinations.
About Us
We have four regional branches - Northern, Central, Canterbury and Southern - that are assisted by the National Support Office based in Auckland.
MDANZ helps individuals, families and whānau by providing specialist information, practical resources, personalised support services, social networks, campaigns for public awareness and advocacy.
What we offer
Among the services, resources and funding opportunities MDANZ offers are:
Fieldwork Service
Our fieldworkers provide personalised support and education.
Counselling Service
A free confidential service for MDANZ members.
Bradley Jenkin Memorial Fund
Discretionary grants enabling members to achieve freedom.
Duke of Edinburgh’s Hillary Award
Challenge yourself, gain confidence and learn new skills.
In Touch Magazine
The latest edition of In Touch is out!
Click here to read the latest MDANZ news and member stories.
Noticeboard
Disabled people and Covid-19 - Episode 5 - Hauora and Mental Health
16/07/2021While we worked collectively to ensure our whānau are safe from the virus, we saw the critical importance of taking care of our holistic wellbeing and mental health during the pandemic.
Disabled People and Covid-19 - EP 4: Distancing
8/07/2021Practicing good distancing has been essential for us to stop the spread of Covid-19 in Aotearoa. Disabled people are amongst the most at risk from the virus, so we know that distancing is a critical part of keeping our community safe.
Disabled People and Covid-19 - Episode 3: Remote Work and Education
29/06/2021During the pandemic, many whānau needed to quickly adapt to new technology and ways of working and learning from home. The rapid shift to “remote” was challenging for a lot of New Zealanders, but our disabled community faced some unique barriers, and unique opportunities in working, learning, and parenting from home during Alert Levels 3 & 4.