Noticeboard

IBM Support Group Meeting

4/08/2020

For more information about the upcoming IBM meeting, click here.

DPO Coalition

30/06/2020

Click here to read the key messages from the DPO Coalition

MDANZ Media Release: Pharmac recommendation will change children's lives

2/06/2020

The membership organisation representing New Zealanders living with rare neuromuscular conditions, Muscular Dystrophy New Zealand (MDANZ), is very pleased and relieved to learn that children with the progressive muscle-wasting disease, spinal muscular atrophy (SMA), should soon have access to the life-changing treatment, nusinersen.

The Latest edition of In Touch is out! 
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