The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.
We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community.
Condition Profile
Myasthenia gravis is an auto-immune disorder meaning our immune system mistakes our own cells for foreign molecules and produces antibodies directed against the body’s own proteins. Read more.
Member Profile
A “zombie-ish” moment in the lead up to a major solo art exhibition led to Judy Smith’s ocular myasthenia gravis diagnosis. She writes about living with the condition and her love of life.
Covid-19 Information
We've collated some useful information from the Ministry of Health and other organisations, about Covid-19 and vaccinations.
About Us
We have four regional branches - Northern, Central, Canterbury and Southern - that are assisted by the National Support Office based in Auckland.
MDANZ helps individuals, families and whānau by providing specialist information, practical resources, personalised support services, social networks, campaigns for public awareness and advocacy.
What we offer
Among the services, resources and funding opportunities MDANZ offers are:
Fieldwork Service
Our fieldworkers provide personalised support and education.
Counselling Service
A free confidential service for MDANZ members.
Bradley Jenkin Memorial Fund
Discretionary grants enabling members to achieve freedom.
Duke of Edinburgh’s Hillary Award
Challenge yourself, gain confidence and learn new skills.
In Touch Magazine
The latest edition of In Touch is out!
Click here to read the latest MDANZ news and member stories.
Noticeboard
A rough guide to vaccine testing and approval processes
6/04/2021Outlining the main stages of development and delivery of a new vaccine. By Professor Shanthi Ameratunga.
Why take part in clinical trials?
6/04/2021There are plenty of benefits to taking part in clinical trials, writes the team at New Zealanders for Health Research.
Telehealth wheelchair assessments under the microscope
6/04/2021Research shows the Telehealth Wheelchair Assessment Service is thought to be a good idea by most wheelchair users and assessors, writes Dr Fiona Graham.