Inflammatory Myopathies

Myopathy is a term used to describe muscle disease.  The inflammatory myopathies are a group of diseases that involve chronic muscle inflammation, accompanied by muscle weakness.  Another word for chronic inflammation of muscle tissue ismyositis.

Muscle inflammation may be caused by an allergic reaction, exposure to a toxic substance or medicine, another disease such as cancer or rheumatic conditions, or a virus or other infectious agent.  The chronic inflammatory myopathies are idiopathic, meaning they have no known cause.  They are thought to be autoimmune disorders, in which the body's white blood cells (that normally fight disease) attack blood vessels, normal muscle fibers, and connective tissue in organs, bones, and joints.

The three main types of chronic, or persistent, inflammatory myopathy are polymyositis, dermatomyositis, and inclusion body myositis.

sourced from 11/03/2015

Useful Websites

The Myositis Foundation (TMA) - for all things myositis

Myositis Association Australia - formally Myositis Support Australasia. This is for anyone with a connection to myositis
(this has been set up by our very own MDA Member Pip McLean and another people in Australia and NZ who have myositis) 

Cure JDM - specifically for JDM 

Facebook Pages & Groups

Myositis Association Australia - The official Facebook page of Myositis Association Australia

The Myositis "Ramblers" - a keep in touch group for all with a connection to myositis - closed group (Pip McLean is an administer for this group and can be emailed to gain access)

Dermatomyositis and Polymyositis Patients (for DM and PM patients ONLY) - message an admin explaining that you have PM or DM and they will add you - closed group (Pip is also an administer for this group)

Other recommended groups

Myositis Support & Understanding- for patients - you will be added and then asked what type of myositis you have - Closed Group

JDM Warriors - for all JDMer's, their families and their supporters - a safe place for kids to post (run by a man called Brandt Stebbins who has JDM) - Closed group

Myositis Friends Support Group (Closed Group) - English based group that welcome international members 

Myositis Canada - a Canadian based group that welcome international members - closed group

Inclusion Body Myositis Caregivers (Closed Group)

Q&A: Here is where we answer some of our members questions. If you have any questions please email them to [email protected] and we will endeavour to answer them.