Support during the Coronavirus pandemic

07 April 2020

Dear Supporter,

I do hope that you are safe and well and have access to any support you need.

As the enormity of the global coronavirus pandemic becomes an unknown reality, we, along with all of you, are facing uncertain times. We also face the very real concern that we will be unable to continue to support our members living in New Zealand with muscle-wasting conditions and their families as we do now.

We have already seen the effect it is having on our ability to generate income. Last week, we have had to postpone a number of key fundraising events and close our telemarketing service, which we are heavily reliant on to form a large portion of our income. MDANZ only receives 8% of its funding from the government and our usual income streams from grants has depleted significantly. 

Here at MDANZ, our history has taught us that it is at times like these that our community, those living with and supporting people living with a condition, becomes stronger than ever. With your help, we are proud to have funded and supported research to drive the development of effective treatments, and support individuals and their families from the point of diagnosis onwards. 

If you donate to MDANZ, your support is going to be crucial in ensuring that we can continue to support people with muscle wasting conditions. There is now an urgent need to raise more funds to meet the growing demand coronavirus will have on our services.

Our response in terms of support for people living with a muscle-wasting condition includes guiding individuals and families through the information coming from government and playing a key role in liaising with neuromuscular specialist clinicians to interpret and build on that information, which is changing daily.

You have our commitment that we will do all we can to continue making every day count for all those we support but in this period of uncertainty we do need more help. Please consider making a donation to support the additional strain on our services and to help minimise the loss of cancelled events, it would be very much appreciated. 

You can do so via donating below.

Your support is more important than ever in ensuring we can continue to work towards a future where everyone living with neuromuscular conditions has access to the support and care they so desperately need.

Thank you for your understanding at this most difficult time.




Trevor Jenkin

National Executive Chairperson

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Account Number: 12 3077 0474718 02
Particulars: 1810918 
Reference: (April 2020)


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Any questions please contact us by phone 0800 800 337 or email [email protected]