Myotonic Dystrophy Type 1

The Myotonic Dystrophy (DM) Toolkit


This resource was created by the Myotonic Dystrophy Foundation and has information for people and families with a diagnosis of DM as well as for healthcare professionals. Please click here and go to page 35 for information and resources for healthcare professionals.

Anesthesia Guidelines

For practical suggestions for the anesthetic management of a myotonic dystrophy patient, click here.

Multisystemic Symptoms of DM

This 5 page document gives a great brief on the symptoms, diagnosis and treatment options for people who have myotonic dystrophy. If you suspect this diagnosis this will help you click here.


We recommend accessing: The Myotonic Dystrophies: Diagnosis and Management

´╗┐Turner, C., & Hilton-Jones, D. (2010). The myotonic dystrophies: diagnosis and management.Journal of Neurology, Neurosurgery & Psychiatry, 81(4), 258-267. doi:10.1136/jnnp.2008.158261.