Facioscapulohumeral Muscular Dystrophy (FSH MD)

What is Facioscapulohumeral Dystrophy?

Facioscapulohumeral dystrophy (FSH), is the third most common of nine muscular dystrophy disorders, affecting approximately 1 in 20,000 caucasions. The term Facioscapulohumeral uses three Latin words to describe the characteristic features of the disorder. Facio means face, scapula means shoulder blade, and humerous is Latin for the upper arm. Muscular dystrophy refers to muscle weakness and wasting. Thus, in FSH the muscles typically affected are those of the face, shoulder blade and upper arms. For more information about Facioscapulohumeral Dystrophy click here.

Research Information

Please click here to see information relating to recent studies (Nov 2014) regarding using Vitamin C, Vitamin E, Selenium and Zinc to improve skeletal muscle function in people with FSHD. The findings are hopeful but FSHD Europe would like to make it clear that this is not a cure and needs confirmation. there is concern that people will take these results and start self dosing with these vitamins which can be harmful.

Please read the announcement for more details and discuss this with your clinician.

Vaccination Recommendations

Click here to be taken to the vaccination page.

Respiratory Care

Click here to be taken to the respiratory care page. 

Support Groups

Check out the support groups page to see what is available in your area.

Useful Websites

USA -  http://www.fshsociety.org