Useful Websites / Links
Neuromuscular websites around the world
The home of MDA Australia - http://www.mda.org.au/
The UK Muscular Dystrophy Campaign - http://www.muscular-dystrophy.org/
The home of MDA USA - http://www.mda.org/
Charcot-Marie-Tooth Disease – http://www.cmt.org.uk/
The Foundation To Support Those Living With Charcot-Marie-Tooth - http://www.hnf-cure.org/
The Friedreichs Ataxia Research Alliance - http://www.curefa.org/
Myotonic Dystrophy Foundation - http://www.myotonic.org/
Networks and research sites
TREAT NMD is a network for people with neuromuscular diseases and professionals working in the field - http://www.treat-nmd.eu/home.php
Support
Provides answers on a broad range of disability topics www.yesdisability.org.nz
Empowering parents, caregivers and whanau who have children with disabilities, health impairments or special needs through support and the provision of information - http://www.parent2parent.org.nz/
Supporting the specific needs of siblings who have brothers or sisters with special needs - http://www.parent2parent.org.nz/start.htm
A Presbyterian Support-facilitated community initiative that offers respite and day activities for younger people with chronic, degenerative neurological conditions - http://www.thebeacon.org.nz/
StarJam offers young people with disabilities the opportunity to stand proudly in the performance spotlight. They get a kick out of it, we get a kick out of it and we promise you’ll get a kick out of it as well! - http://www.starjam.org/
At Diversity New Zealand, we take a unique approach to diversity, seeing it as a means to create healthy, effective change, not an end in itself. We believe in its power to evolve humanity. - http://diversitynz.com/
Sport
Offering people with disabilities the same outdoor pursuit opportunities as people without disabilities www.backup.org.nz
Giving people of any disability the chance to experience a safe surfing and beach experience www.disabledsurfers.co.nz/
Sailing, enriches the lives of people with any type of disability, the elderly, the financially and socially disadvantaged - http://www.sailability.org/nz/newzealand/
Adaptive Snow Sports is about adapting equipment and lessons and providing accessible support systems to allow people with a wide range of disabilities to take to the snow and experience the freedom of snow sports - http://www.disabledsnowsports.org.nz/
Inspire and enable Harbour People to enjoy regular sport & physical activity - http://www.harboursport.co.nz/Information/Disability+Sport/People+with+disabilities.html
General Information
Accessible travel www.enabletravel.biz
Disability Information web site www.weka.net.nz
Your guide to accessible accommodation, activities and products in New Zealand - http://www.accomobility.co.nz/Home.html
The HDC Code of Health and Disability Services Consumers' Rights Regulation 1996 - http://www.hdc.org.nz/theact
Suppliers of home care equipment
There are many suppliers of home care equipment; here are just a few examples:
Invacare - http://www.invacare.co.nz/index.cfm/1,77,0,33,html
Allied Medical - http://www.alliedmedical.co.nz/
Morton Perry - http://www.mortonperry.co.nz/
Medix 21 - http://www.medix21.co.nz/
This is not a definitive list, if you have a website that you think others should know about let us know at Info@mda.org.nz