Who we are

Neuromuscular conditions are unpredictable. They can affect anyone even though there’s no family history. This means all families are potentially threatened by these severe and incurable conditions.

Neuromuscular Alliance is a not for profit incorporated society with a national office and four branches which provide a range of free services to people affected by 40 or more neuromuscular conditions. Neuromuscular conditions cause disabling loss of muscle tissue. This results in progressive deterioration of nerves or muscles or both, depending on the condition involved. Mobility is typically affected and there can be problems with speech, breathing and heart function. All conditions are incurable and always progressive.

However, hopes are growing that advances in genetic and medical research will one day provide treatments that will offset the effects of these debilitating conditions. Neuromuscular Alliance now has its own research programme through the Neuromuscular Alliance Research Foundation.

The members of Neuromuscular Alliance include those with a condition, family members and carers, health professionals and education professionals.

The services provided to members are unique:

• Specialised information regarding neuromuscular conditions
• Promotion and education
• Quarterly publication of In Touch magazine
• Workshops
• Advocacy on behalf of members
• Liaison with health, disability and social welfare organisations
• Free library service
• 0800 free phone outside Auckland (0800 800 337)
• Informative, user-friendly website
• Support network
• Assistance with funding applications
• Direct support with research projects through the Research Foundation
• Help with equipment provision

For more information on the activities of Neuromuscular Alliance go to Upcoming events. If you would like to join us, go to Join now. If you would like to donate go to How to donate.